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The Neurological, Palliative care and Rare conditions (NPR) Working Group
The Neurological, Palliative care and Rare conditions (NPR) Working Group supports the National Disability Insurance Agency (NDIA) to deliver improved experiences for people with neurodegenerative and neuromuscular disorders or rare conditions or those requiring palliative care. The first meeting was held in May 2024.
The NPR Working Group is one of a number of sector reference groups to help develop a strong working partnership with the NDIA. To read more about the reference groups please visit: https://www.ndis.gov.au/about-us/reference-group-updates
Membership
Working Group Members
- Rohan Greenland, CEO MS Australia (NAA)
- Anne Wilson, CEO Emerge Australia (NAA)
- Olivia Nassaris, CEO Parkinsons Australia (NAA)
- Clare Stuart, Manager Policy and Advocacy, Mito Foundation (NAA)
- Kylie Miskovski, National Policy and Strategy Adviser, Dementia Australia (NAA)
- Megan Maack, CEO, Childhood Dementia (NAA)
- Nicole Millis, CEO, Rare Voices
- Fiona Lawton, Disability Advocacy Manager, Rare Voices
- Bronwyn Morkham, CEO, Young People in Nursing Homes Alliance (NAA)
- Camilla Rowland, CEO, Palliative Care Australia
- Clare Sullivan, CEO, MND Australia (NAA)
NDIA Attendees
- Aaron Verlin, General Manager, Co-design and Engagement
- Prue Coroneos, General Manager, Policy Evidence and Practice Leadership
- Jodie Stangel, General Manager, Specialised Service Delivery
- Marg Renwick, Branch Manager, Engagement and Inclusion
Secretariat
- Nick Hopper
Communiques
The NPR Working Group may decide to issue communiques from time to time about its work.